From 2005 to 2008 Rita was President of the Norwegian Mucopolysaccharidosis (MPS) Society. She did many public speaking engagements in places including Oxford, Copenhagen, Stockholm, Helsinki and Oslo. Audiences largely consisted of medical professionals, researchers as well as the families of those who were affected by the conditions known as MPS Syndrome.
Her personal motto “as long as there is life there is hope” has created an opportunity to get government granted treatment for children suffering from Hurler Syndrome. The work she has done to fight for this treatment has so far awarded her with her son Benjamin, still alive at age 23, who is the oldest non treated (bone marrow transplant) Hurler patient in the world, and opened the door for the treatment of many other children with rare disorders.